Okay folks, we finally have some (cautiously) good news! She started a new medication last night and she has been SO MUCH BETTER today! I've been giddy all day, now I'm trying to stop the hyperventilating so I don't pass out!
I'm trying to be careful, knocking a lot of wood...but she's just so much better that we feel like she's turning a corner. The doctors are so much better, even the same ones we had last week. Maybe it's all the prayers. Each day we are seeing occupational and physical therapists and today the doctor said we could get speech up here too. This is great because it should catch her up where she's fallen behind due to all the seizuring.
So, we are optimistic. Please keep up the prayers and all, it seems to be working!